PATIENT REGISTRY AND CLINICAL DATABASE IN MALAYSIA
The Patient Registry unit (PRU) was previously one of the subunit under clinical epidemiology unit (CEU) in CRC.
Its roles are to :
1) Initiate and maintain establishment of patient registries in major clinical disciplines
2) focus on keeping patient registries alive
3) keep data resources flowing
PRU's services
- Administration
- Training
- Technical
- Reporting
o Initiates and maintains the establishment of patient registries.
o Keep patient registries alive by ensuring the flow of data resources.
o Plans and maintains the infrastructure required to support the operations of registries.
o Research services including project oversight & management, protocol development, etc.
o Helps coordinate writing sessions.
o Ensures registries produce the promised results and comply with applicable regulations, ethical guidelines and best practices.
o Maintain line of communication between registry and MOH on related activities.
Our Motto :
"To Improve patient's care through quality data"
Patient Registers: 10 reasons why you need one
NCCR 2011 Pre-Conference Forum on Patient Registries
Slide and poster presentation by MIROS
