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#.	REPORTS	Description
1.		Malaysian Gastrointestinal Registry : 1st Report 2009 Published: March 2010 This first report for the Malaysian Gastrointestinal Registry includes an analysis of the National Endoscopy Registry (NER). The primary objective for the NER was to establish the pattern of both diagnostic and therapeutic gastrointestinal (GI) endoscopic practices in Malaysia. The report revealed that the most common procedure for gastrointestinal endoscopy was Oesophagogastroduodenoscopy followed by Colonoscopy. One relatively new procedure, Endoscopic Ultrasound, which is an important tool for staging upper GI malignancy and assessing pancreatic lesion is also covered in a chapter of its own. The data in this report includes the full spectrum of therapeutic endoscopy, and such information is invaluable in recording epidemiological time trends in GI disease as well as in the practice of GI endoscopy in Malaysia.

2.		6th Report of Malaysia Registry of Intensive Care 2008 Published: May 2009 ISSN: 1985-9945 Price: Please enquire with authorized bookseller The National Audit on Adult Intensive care Units (NAICU), a systematic review of the practices of intensive care units in Malaysia has recently underwent a revamp and is now known as the Malaysian Registry of Intensive Care (MRIC). This MRIC report is an analysis of data of patients admitted to ICUs in 31 centres nationwide in 2008 and one of the main findings was the increase of direct transmission of cases from A&E (16.7% in 2008 vs 9% in 2007). The three most common diagnoses of ICU admission were sepsis, head injury and community-acquired pneumonia.

3.		MOH's Pharmaceutical Services Division and CRC releases MSOM 2006 Published: May 2009,173 pages Language: English ISSN: 1823-8300 Price: Please enquire with authorized bookseller The National Medicines Survey (NMUS), a project jointly conducted by the Ministry of Health’s Pharmaceutical Services Division and Clinical Research Centre to collect quantitative information on the state and trends of medicines utilisation at various levels of the health care system have released their third report, the Malaysian Statistics on Medicine (MSOM) 2006. Browsing through the chapters you will get an insight on the top 40 drugs utilised and the top 30 therapeutic groups according to medicines use in Malaysia. This report may serve as a source of reference for those embarking on other health systems research or clinical audits towards rational medicines use, or reviewing clinical practice guidelines and medicines use policies. National Healthcare Statistics Initiative

4.		16th Report of the Malaysian Dialysis and Transplant Registry (MDTR) A publication of the National Renal Registry, Malaysian Society of Nephrology Published: August 2008, 216 pages Language: English ISSN 1675-8862 Price: Please enquire with authorized bookseller. Limited free copies from NRR & MOH The Malaysian Dialysis and Transplant Registry (MDTR) is a collection of information on the patients with kidney diseases in Malaysia. This report presents the data on the patients with end stage renal disease (ESRD) on renal replacement therapy (RRT), patients on chronic dialysis therapy as well as renal transplantation. It has been stated in the report that the patient’s ascertainment rate is recorded at almost 96% while the centre participation rate is 88.8%.

5.		Third Report of the National Transplant Registry 2006 Year 2008, 192 pages Language: English ISSN 1823-5719 Price: Please enquire with authorized bookseller. The National Transplant Registry (NTR) has been published since 2003. Among the objectives of the NTR is to determine the frequency and distribution of all types of transplantation activity in Malaysia. The registry also determines the outcomes of transplantation as well as the factors influencing the outcomes. Other objectives of the registry include evaluating the transplantation services in the country, stimulating and facilitating the research on transplantation and its management. This is the third report published since the set-up of the NTR. It provides data from seven types of transplantation, i.e. blood and marrow, cornea, heart and lung, liver, renal, heart valve, bone and tissue. A section on cadaveric organ and tissue donation was introduced in 2005 contributed by the National Transplant Resource Centre. A directory of transplant centers in Malaysia is also provided in the registry.

6.		First Report of the Malaysian Registry of Renal Biopsy 2007 A publication of the National Renal Registry, Malaysian Society of Nephrology and CRC MOH Year 2008 Language: English ISSN 1985-6989 Price: Please enquire with authorized bookseller. Limited free copies from NRR & MOH. The Malaysian Registry of Renal Biopsy (MRRB) is a collection of information on the Ministry of Health patients who undergone renal biopsy and histopathology treatment. This is the first report from the MRRB and shall confine to renal biopsies reported by the MOH centers only. The patient’s ascertainment rate stated in the report is recorded as 93.3%. The data collection is on going for this registry. In 2008, the participation is open to the non-MOH nephrologist and renal physician. We are hopeful that the subsequent reports will include data from all the MOH centers as well as from non MOH institutions and private hospitals.

7.		The Second Annual Report of the National Eye Database of 2008 Year 2008, 174 pages Language: English ISSN 1985-7489 Price: Pleas enquire from authorized bookseller. Limited free copies are available from the NED & MOH The National Eye Database (NED) is an eye health information system supported by the MOH. It is a clinical database consisting of six patient registries and a monthly ophthalmology service census. The patient registries are Cataract Surgery Registry, Diabetic Eye Registry, Contact Lens-Related Corneal Ulcer Surveillance, Glaucoma Registry, Retinoblastoma Registry and Age Related Macular Degeneration Registry. The source data procedures are eye care providers, currently from the public. Information collected, both clinical and epidemiological, are very useful in assisting the MOH, Non-Governmental Organisations, private healthcare providers and industry in the planning, evaluation and continuous improvement of eye care services, leading to prevention and control of blindness in the nation.

8.		The First Report of the National Eye Database 2007 Year, 2008,100 pages Language: English Price: Please enquire with authorized bookseller. Limited free copies from NED & MOH Order No. ### (book seller to provide) The National Eye Database (NED) is a collection of information on the patients with vision threatening eye diseases. The information provided in the database is in terms of the patients’ natural history, treatment outcomes and build in clinical performance indicators which are used in monitoring the quality of care. This first annual report presents the combination of data from the Cataract Surgery Registry 2O02 to 2007, Diabetic Eye Registry 2007, Contact Lens Related Corneal Ulcer Surveillance 2007, Glaucoma Registry 2007, and MOH Ophthalmology Service Census 2002-2007. The Cataract Surgery Registry has provided the data performed in public hospitals which 64,553 cataract surgeries is involved, with patient’s ascertainment rate of 84 % and the outcome of data available is 86%. While the data from The Diabetic Eye Registry has shown that from 10,856 diabetic patients, 38.2% patients had diabetic retinopathy. Contact Lens Related Corneal Ulcer Surveillance 2007 has reported that 103 affected patients ( 109 eyes) have chosen monthly disposable contact lens as their preference, rather than another type of lens. They also reported that pseudomonas is the commonest organism that causes the infection.

9.		Report of the Malaysia National Neonatal Registry 2006 Year 2006 2006,130 pages Languages: English ISSN ISSN 1985 - 7004. Price: Please enquire with authorized bookseller. Limited free copies from NNR & MOH Order No. ## (book seller to provide) The Malaysian National Neonatal Registry, after a pilot study in 2002 involving 14 hospitals, presently has 32 source data producers from Neonatal Intensive Care Units (NICU's) throughout Malaysia. They include all MOH tertiary NICU's, one University-based hospital tertiary level NICU and all NICU's in 9 smaller hospitals. About 9,000-11,000 newborn infants per year are enrolled in the registry based on the registry criteria. The registry maintains clinical based data of all very low birth infants (ie below 1500 grams birth weight), those below gestational age of 32 weeks as well as that of critically ill term infants delivered in SDP hospitals. For further information please see http://www.acrm.org.my/mnnr/

10.		Annual Report of the Diabetes in Children & Adolescent Registry (DiCARE) 2006-2007 2008, 130 pages Language: English ISSN 1985-4900 Price: Please enquire with authorized bookseller. Limited free copies from DiCARE & MOH The objective of Diabetes in Children and Adolescents Registry (DiCARE) under the Ministry of Health (MOH) is to collect information about diabetes mellitus in children and adolescents in Malaysia. This is important in estimating the incidence of diabetes mellitus among children and adolescents and at the same time evaluating the risk factors and the management. The registry aims to evaluate the efficiency and effectiveness of health care among the young diabetics and the health economics of diabetes. The issues related to diabetes care can be looked into and solved when the patients are still young, with the hope that they will become knowledgeable adults who can reasonably handle their diabetes well and thus decrease the long term complications. This information is deemed important in assisting the MOH, Non-Governmental Organizations, healthcare providers and industries in the planning and evaluation of diabetes mellitus prevention and control.

11.		Annual Report of the National Cardiovascular Disease Database (NCVD): Acute Coronary Syndrome (ACS) Registry 2006, 177 pages Language: English ISSN1985-4757 Price: Please enquire with authorized bookseller. Limited free copies from NCVD & MOH Summary This is the inaugural annual ACS report of the year 2006 from ACS NCVD Registry. The report contains a large amount of clinical information of thousands of ACS patients from participating sites nationwide which will undoubtedly depict a better picture on the local trend of acute coronary syndrome and its current practices. This report covers the following five main chapters; 1. Provision of Acute Coronary Care Services in Malaysia 2. Patient Characteristics 3. Clinical Presentations and Investigation 4. Treatment 5. Outcome

12.		National Medicine Use Survey A publication of the Engineering Services Division and the Clinical Research Centre Ministry of Health Malaysia ISSN 1823-8300 Price: Please enquire with authorized bookseller. Limited free copies from Clinical Research Center, Ministry of Health, Malaysia. The National Medicines Survey (NMUS) is a project initiated and supported by the Ministry of Health (MOH) to collect information on the supply, procurement, prescription, dispensing and use of drugs in Malaysia. The Malaysian Statistics on Medicine (MSOM) 2005 is the second report published on the data collected. It is worthwhile to note that the first report MSOM2004 presented results largely from pilot surveys and using test methods basically to demonstrate that such a project was feasible in a healthcare system such as Malaysia that has many players. In 2005, we have not only scaled up the survey with larger sample size and wider distribution, but also refined data processing and statistical methods. The statistical estimates in MSOM2005 are derived using highly elaborate data processing and complex statistical methods as explained in the Methods section of this publication. Hence results in MSOM2005, in our opinion are more reliable, more representative and more robust. We are now in the final stages for writing–up MSOM2006 which is the report for the NMUS 2006, and we expect the publication to be out in February 2009.

13.		Malaysian Statistics On Medical Devices 2007, 124 pages Language: English A publication of the Engineering Services Division and the Clincial Research Centre Ministry of Health Malaysia ISBN 1985-7381 Price: Please enquire with authorized bookseller. Limited free copies from Clinical Research Center, Ministry of Health, Malaysia. This long awaited report on medical devices in Malaysia is finally out. To our knowledge, there has not been any such data in the public domain. This report provides statistics on the availability of a wide range of medical facilities and devices in Malaysia. It covers both the public and private sector, and provides estimates to state level. The report is organized into 18 different medical and allied health disciplines, with local experts’ inputs and comments. We hope the report will be helpful not only to the policy makers, clinical managers, epidemiologists & researchers but also to the industry. Softcopy & hardcopy available

14.		National Trauma Database May 2006 To April 2007 – First Report 2008, 100 pages Language: English ISSN 1985-4714 Price: Please enquire with authorized bookseller. Limited free copies from NTRD & MOH Order No. ### (book seller to provide) A publication of the National Trauma Database And Clinical Research Centre, Ministry of Health Published: April 2008, 121 pages Language: English Limited free copies from NRR & MOH This report provides information on major trauma cases in 5 Malaysian centers in the period of time from May 2006 to April 2007. It outlines the patient’s demographics, characteristics of major trauma admissions, pattern of injury, clinical parameters upon admission, the outcome and length of stay of the patients in each centre.

15.		National Suicide Registry Malaysia-Preliminary Report: July – December 2007 2008, 27 pages Language: English Price: Please enquire with authorized bookseller. Limited free copies from NSRM & MOH The National Suicide Registry Malaysia was officiated in 2007 to compile the census of suicidal deaths that occur in Malaysia via its network of forensic services. It is sponsored by the Psychiatric and Mental Health Services and the Forensic Medicine Services of the Ministry of Health Malaysia (MOH); while the Clinical Research Centre (CRC) provides the technical expertise. The National Suicide Registry Malaysia (NSRM) aims to create a nationwide system to capture data on completed suicide in Malaysia i.e. the rates, methods, geographic and temporal trends and the population at high risk of suicide. This registry provides information on the natural history and causation of suicide; the contributing factors most amenable to preventive efforts; and the most appropriate target population(s). Apart from that, it is able to provide both state‐ and national‐level data. Being a registry, the NSRM might not be able to provide in‐depth details about the causation of suicide. However, it would certainly identify trends and form the baseline for other research in this area.

16.		National Mental Health Registry Schizophrenia Report 2003-2005 2008, 45 pages ISSN No 1675-8456 Price: Please enquire with authorized bookseller. Limited free copies from NSRM & MOH This National Mental Health Registry (NMHR) Report 2003-2005 provides detailed information about the profile of persons with schizophrenia who presented for the first time to various psychiatry and mental health providers throughout Malaysia. More detailed description regarding pharmacotherapy is reported and few cross tabulations done in an effort to provide better understanding and more clinically meaningful reports. With this report, the registry will provide epidemiological data and temporal trends of psychiatric disorders in Malaysia.

17.		Study On Under 5 Deaths in Malaysia In The Year 2006 Published:May 2008, 125 pages Language: English ISSN : 978- 983- 44000-1-9 A Study on Under Five Deaths In Malaysia in the Year 2006 Price: Please enquire with authorized bookseller. Limited free copies from NRR & MOH This is the report of the study on all deaths in children aged 28 days up to 5 years (28-1824 days) in the year 2006. The data of the study was collected from all 14 states in Malaysia. This report was the product of the first extensive prospective study on under five deaths looking at incidence rate and causes of death and their distribution by personal characteristics and geography, and circumstances leading to the death including pre and in hospital care.

18.		Study On Under Five Deaths In Malaysia 1993 – 2003: Where and Why 5000 children in Malaysia are dying every year? ISBN 978-983-44000-0-2 Published: May 2008, 106 pages Language: English ISSN : 978-983-44000-0-2 A Study on Under Five Deaths In Malaysia in the Year 2006 Price: Please enquire with authorized bookseller. Limited free copies from NRR & MOH This is the report of the first extensive national level review of deaths in children under 5 years of age in Malaysia. The 11 years review from 1993 to 2003 showed that the death incidence rate of children less than five years old in this country had improved over the years. This report provided useful information especially on the conditions that killed children in Malaysia. It also provided the information on the children who were at risk of dying from these conditions especially in terms of age groups, ethnicity and geography. Infections especially diarrheal diseases and pneumonia were stated in the report as the important causes of death in the first two years of life and injuries after the first year of life.

19.		National Trauma Database: January to December 2007 Second Report This report provides information on major trauma cases in 5 Malaysian centers in the period of time from May 2006 to April 2007. It outlines the patient’s demographics, characteristics of major trauma admissions, pattern of injury, clinical parameters upon admission, the outcome and length of stay of the patients in each centre.

20.	coming soon	An Audit of Diabetes Control & Management (ADCM) This registry has just started on June 2008. Only preliminary data is available.

21.		The 2nd Report of the National Cancer Registry 2003 December 2004 Language: English, 141 pages Price: Please enquire from authorised bookseller. Limited free copies are available from the NCR & MOH. The National Cancer Registry data is derived from the Ministry of Health's hospital information system, the National Registration Department (jabatan Pendaftaran Negara) and most importantly the individual doctors who provide cancer diagnostic services or who care for cancer patients and voluntarily report data to the NCR. The NCR aims to determine the disease burden attributable to cancer and identify the population high at risk to whom cancer prevention should be targeted. it also identifies potential risk factors involved in cancer and evaluates cancer treatment, control and prevention programmes.

22.		The First Report of the National Cancer Registry 2002 July 2003 Language: English, 192 pages Price: Please enquire from authorised bookseller. Limited free copies are available from the NCR & MOH. The National Cancer Registry (NCR) is a service supported by the Ministry of Health (MOH) to collect information about cancers in Malaysia. The information allows us to estimate the incidence of cancer, and to evaluate its risk factors, treatment and outcomes. Such information is useful for assisting the MOH, Non-Governmental Organisations, private providers and industry in program planning and evaluation, leading to cancer prevention and control. The cancer incidence data that is described in this report is based on Malaysians in Peninsular Malaysia using data from the vital statistics of Malaysia, 2002.

23.	coming soon	NCPR: Cervical Cancer Only preliminary report is available. The annual report for this registry is in progress.

24.	coming soon	Malaysian Liver Registry No report available.

25.	coming soon	NCPR: Nasopharyngeal Cancer

26.	coming soon	NCPR: Colorectal Cancer

27.	coming soon	National Inflammatory Arthritis Registry (NIAR)/ Rheumatoid Arthritis Registry

28.	coming soon	NCVD: Percutaneous Coronary Intervention (PCI) Registry

29.	coming soon	Adult Diabetes Registry

30.	coming soon	National Endoscopy Registry

31.	coming soon	National Cancer Patient Registry (NCPR): Oncology

32.	coming soon	Cardiothoracic surgery registry (MyCARE )

33.	coming soon	NCPR: Hematological Malignancy

34.	coming soon	NCPR: Breast CA

35.	coming soon	National Orthopedic Registry Malaysia: Hip Fracture Register

36.	coming soon	National Orthopedic Registry Malaysia: Diabetic Hand & Foot Disorder Register

Last Update 21 July 2010

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