3. Malaysian Statistics on Medicine 2005
Over RM 2 billion was spent on prescription drugs in 2005 and most of it, 63.8% of top 40 and 18.5% of all medicines, was to treat blood pressure, cholesterol and diabetes. Click here for full article | Website
Although the incidence of treated End Stage Renal Disease (ESRD) has increased dramatically in the country over the last 20 years Malaysia is unable to provide universal access to dialysis for all of its ESRD population. Click here for full article
Renal registry data is useful for public health and healthcare management and countries in the Asia-Pacific region should have their own and share resources to serve patients better. Click here for full article
PI: Dr Wan Shaariah Md. Yusuf
Malaysia lacks data on End Stage Renal Disease (ESRD). This multi-center prospective cohort study on the morbidity and mortality among dialysis population in government dialysis centres in Peninsular Malaysia. Data and outcome of newly diagnosed ESRD patients between January to December 2007 will be collected from two groups: newly diagnosed patients (Study A) and patients just starting dialysis treatment (Study B). Data includes patients planning renal transplantation as well as those who already had the surgery. Data collection is currently in progress and as of June 2007, there are 74 sites with 1,354 patients in Study A and 161 patients in Study B. Case Report Forms (CRFs) received from January to April have been statistically analysed with a Data Quality Report meeting held on 24 July 2007. A site-monitoring visit planned for September 2007. Data collections for both studies will end in December.
PIs: Dr. Hussain Imam Muhammad Ismail and Dr. Wong Swee Lan
The Under Five Death Mortality study aims to determine the common causes and distribution as well as to determine circumstances leading to death including pre and in-hospital care. Currently the two systems of collection of data on neonates; the rapid reporting system of perinatal and neonatal deaths and National Neonatal Registry does not include data on those aged one-month to five years. This study collects data on children aged 28 days up to 5 years old, including non-Malaysians, who died in or outside of hospital between 1st January and 31st December 2006. The Case Report Forms (CRFs) Review Meeting was held on 9-11 May 2007 to review and edit all CRFs received prior to statistical analysis. On 17th August 2007 preliminary results were discussed with the final definitive analysis scheduled for end of August 2007. The results would in turn be distributed to all researchers in September 2007 for endorsement and interpretation followed by report writing planned for October 2007.
PI: Dr Fuziah Md Zain
DiCARE is a collaborative project to determine the number, the socio-demographic profile and the time trend of diabetes mellitus (DM) in children and adolescents as well as to evaluate the outcomes of treatment. The project is an ongoing real-time register of patients 20 years old and below that captures data on demographic, clinical features and outcome of DM via eDiCARE, a web-based case reporting system coordinated by the Clinical Research Centre.
In Data Collection phase since April 2006 till end of 2008, as of 31st July 2007 264 cases have been notified to DiCARE. Currently 17 sites have registered with 12 sites actively reporting to the registry with 235 patients aged between 1.08 - 19.75 years old between April 2006 and April 2007. Preliminary data analysis shows higher frequency of DM occurring in girls with 45% Malays 32% Chinese and 18% Indians. Look for further details in the soon to be published DiCARE’s first report.
PI: Prof. Dr Sim Kui Hian
The NCVD was established to integrate existing cardiovascular disease databases in Kuala Lumpur, Sarawak, Penang, Johore and Institut Jantung Negara to achieve a nation-wide cardiovascular database. Supported by the Ministry of Health (MOH), the NCVD will enable healthcare providers to know the incidence of cardiovascular disease and to evaluate its risk factors and treatment leading to disease prevention and control. Currently, two integrated nationwide databases include the NCVD- Acute Coronary Syndrome (ACS) Registry launched on 31st March 2006 and the NCVD- Percutaneous Coronary Intervention (PCI) Registry initiated on 13th January 2007. Currently, the NCVD ACS registry is in the Data Collection Phase with the total numbers of patients notified are 4780 as of 31st July 2007 by 13 participating centre. Data from the NCVD PCI registry has completed six months of data collection. The total numbers of patients undergone PCI are 1,617 as of 31st July 2007 by seven participating centre.
National Trauma Database (NTrD)
PI: Dr Sabariah Faizah Jamaluddin
The NTrD is a service initiated supported by the Ministry of Health (MOH) to collect information about trauma in Malaysia, which will enable us to know the incidence of trauma, and to evaluate its risk factors and treatment in the country. Currently in Data Collection phase, as of 31st July 2007, 1042 patients have been notified by five participating hospitals namely Selayang Hospital Selangor, Kuala Lumpur Hospital, Sultanah Bahiyah Hospital Alor Star, Penang Hospital and Sultanah Aminah Hospital, Johor Bahru.
The CRC is inviting GPs to be part of this study. Download the brochure and poster here and the Protocol synopsis here or just contact us. If you are a patient and would like to be part of this research, please contact 03-4042 7850 or 03-4042 7851.
PI: Dr Ashari Yunus, IPR
Currently in Data Collection phase with the total number of patients enrolled at 83, an increase of 33 patients from the previous year. Participating site is the Institute of Respiratory Medicine in Kuala Lumpur.
PI: Dr Fauzi Ismail
Currently in Data Collection phase, as of 13th August 2007 the total number of patients stands at 79 from participating sites including Sultanah Nur Zahirah Hospital Kuala Terengganu, Selayang Hospital Selangor, USM Hospital Kubang Kerian, Permai Hospital Johore, UKM Hospital Cheras, and Penang Hospital.
PI: Dr Fauzi Ismail
The project is currently in the Data Analysis phase with data collected from participating sites that include Klinik Kesihatan Seri Kembangan, Klinik Kesihatan Puchong and Klinik Kesihatan Kelana Jaya in Selangor. Data analysis is being carried out by HealthActCHQ in Boston USA.
PI: Dr Muhammad Hadhrami Hussein, UMMC
Currently in Study Initiation Phase, the study has finalise the DQOL in preparation for the data collection to be done simultaneously with Validation Of Summary Of Diabetes Self Care Activities (SDSCA) Questionnaire.
PI: Dr Muhammad Hadhrami Hussein, UMMC
Currently in Study Initiation Phase, the pre-test for SDSCA has been carried out on 17th July 2007 at UMMC, duly amended in the BM version of SDSCA and finalized following the expert panel review meeting.
PI: Dr Ramli Musa , UiTM
Currently in Pilot Study phase, the pre-test was carried out on 1st August 2007 at UiTM Shah Alam to come up with the pre-final version of the FES to be used in the pilot study. A meeting was held on 6th August to discuss the pilot and actual validation study to be conducted at schools in the Klang Valley area. The study is currently awaiting approval from the Ministry of Education to begin end of August.
PI: Dr Ramli Musa, UiTM
Currently in Pilot Study phase, the pre-test and pre-final version of the EDE-Q prepared for the pilot and actual validation study to be conducted at schools in the Klang Valley area. The study is currently awaiting approval from the Ministry of Education with the pilot study scheduled to begin end of August.
PI: Dr Wan Shaariah Md Yusuf
DMR is in initial phase whereby the pilot study will be carried out in Seremban Hospital using DMR web application.
PI: Dato’ Prof Dr Tan Hui Meng
Expert panel meeting will be held on 15th August to harmonize the blinded and non-blinded version of questionnaire translations. The pre-test and pilot study is soon to be carried out after the questionnaire is finalized.